Kinslee is in REMISSION!!!

I'm sure most of you know by now but last Tuesday we got the amazing news that Kinslee is in remission meaning she has ZERO cancer cells left in her blood!!!  It is amazing that in 29 days they can accomplish this with chemo and steroids!!!  Thank you guys for praying for our princess!!!  We are giving God all the glory for answering our prayers and healing!  Our God is an awesome God!!!  Also on Tuesday we had our first clinic visit here in Abilene to check and make sure Kinslee's numbers looked good enough to start the next phase of her long 2 1/2 year journey of treatment!  Her numbers looked great even after coming off of steroids meaning she was ready to start the Consolidation phase.  This phase will be 28 days long.   
We started the Consolidation phase on Thursday and went back to the clinic at Cook Children's for another spinal with chemo injection as well as an IV chemo treatment.  She did so good that day!  She was so brave and didn't cry at all during the procedure :) this was a first for Kinslee!!!  It made the day go so much smoother for everyone!  I am so proud of my little fighter princess!!!!  She amazes me!!!  We also started an oral chemo we take every night before bed.  During this phase we will be traveling once a week for spinals and chemo injections.  She will have a total of 3 spinals back to back!  She's got two more weeks of spinals then she gets a week off!  The next phase is called Interim Maintenace I.  It is an 8 week phase.  It will consist of chemo treatments every 10 days for 41 days.  We should be able to receive most of these IV chemo treatments here in Abilene!  We will be traveling on day 31 of this phase for another spinal and chemo injection.  But we are so excited she will be able to get treatments so close to home :) 
The next 4 months of treatment will be intense but we are praying that she continues to do well handling all the treatments with minimal side affects.  We will also continue to pray for good numbers so that she can stay well and out of the hospital.  Her numbers have been greater than 1000 which means she is at low risk for infection but with flu and cold season here we are going to continue to be homebodies for the next couple of months!  We just can't leave anything to chance and we are totally ok with that!  We have already had to make a trip to the ER on Friday and we do not want to be doing that again anytime soon!  Kinslee was running a fever of 101.5 so we had to take her to the ER at 7:30 pm in the cold and icy weather :( bad timing!!!  They checked her blood counts, did blood cultures looking for signs of infection and gave her an IV of antibiotics.  Thank goodness they could not find anything wrong and sent us home for the night!  It was very scary but such a relief!!!  We are thinking maybe the chemo caused her to have fever!?!  I plan on discussing this with her doctor at clinic on Wednesday!  Hope everyone is having a blessed weekend and that you guys are staying warm in this crazy yucky weather!  Thanks again for all the prayers!!!  We appreciate everyone of them as well as the encouraging calls, texts, comments, cards, and gifts!!!  We are truly blessed with the BEST friends and family!!!  We love you all!!!!

 

 

 

 



Home Sweet Home

Thank you for the prayers on Thursday!!!  We appreciated each and every one of them!  Prayers are definitely being answered....Thanks to our Almighty God!!!!  Kinslee's numbers came back looking amazing!  She is doing so well!!!  Procedures went well!  I got to be with her the entire time!  Not easy seeing her like that but I know it is for the best at this time!  She is a tough little princess!!!  We also got some exciting news that morning!!!  They surprised us with letting us go HOME!!!!  Yes that's right...we went home Thursday afternoon :)  Best surprise!!!  Kinslee was so excited to be going home!  She was ready to see her bubba and puppies!  It was a crazy busy but wonderful day!!!!  The first thing she wanted to do was go outside and swing!  It was cold and getting dark but thankfully Friday was a beautiful day so Kinslee got to get outside and swing in her swing!!!  Made my day to see her laughing and smiling so big :) Cason got here on Friday so it was a fun and exciting day for us all!  Kinslee got to spend a little time with her MeMaw and PePaw too!  We are so thankful to be back in the comfort of our home!!!  Kinslee has also been sleeping better and not waking up asking to eat during the middle of the night :) YaY!!!  She has been hurting a little from the procedure but it's not been slowing her down from enjoying her puppies and being home!  She is like a different child right now!  She is so much happier!!!   Makes this momma's heart so happy!  Thank you thank you thank you for praying!  We know God is hearing your prayers for Kinslee because we can feel them, so please continue to pray.  He can and Will heal her, I know he's preparing her for wonderful things in the future!  We are still waiting to hear back from the doctor on test results!  We should know something by Tuesday!  I have a peaceful feeling that she is in remission :)

"The Lord has done great things for us, and we are filled with joy."  Psalms 126:3

Big Day Tomorrow: Please Pray

As most of you know, tomorrow is day 29!!! This is a Big Day for Leukemia patients!  Please pray that things go well for our princess in the morning!  Kinslee will be given gas for another spinal tap and a bone aspiration procedure.  The bone aspiration tells us that Kinslee is in REMISSION!!!!  Please pray specifically that the cancer is ALL gone and out of Kinslee's body !!!  We will not have these results until sometime next week!   

Day 22: Chemo Treatment Day and A new baby cousin

Yesterday Kinslee got another chemo treatment.  Her numbers looked great :) we are so happy and thankful for that!  We are not only asking God everyday to watch over our sweet baby girl but also thanking him everyday!!!  I cannot say it enough...God is so Good!!!  Thanks again to all of those who continue to pray for miss Kinslee especially on her treatment days!  Thursdays are still very stressful for Kinslee as well as mommy and daddy.  She cries during most of the clinic visit :( but thankfully she does not experience any pain during treatment.  She just works herself up because she is so scared.   We walk in the clinic and she's already crying "all done mommy...all done"!!! :( breaks my heart she has to go through all of this.  On a lighter note...my sister's baby made his big debut yesterday!!!  Meet Jace Alan Apolinar  7 lbs. 14 ozs.  19 3/4 in.  He's perfect!!!  Congrats Alex, Shauna, and Big Sister Aubrey!!!  We are all so in love already!  Kinslee is ready for them to go home so she can go meet her new baby cousin!  She is officially not the baby anymore!!!! :)

sweet baby boy

 

Last Friday we made the move to Aledo into an rv thanks to our friends at Hanner Chevrolet!  Thank you Hunter for making it all possible!!!  We are so thankful for all of our wonderful friends!!! We decided to make the move from the Ronald McDonald House because we wanted to keep Kinslee safe from people kiddos and germs.  We have to keep Kinslee from getting sick or we will end up back in the hospital.  She is very susceptible to infections now so we didn't want to take any chances.  We loved the RMH and have absolutely nothing bad to say about it!  It's a wonderful place but since we had this opportunity we decided to jump on it!  Here is a pic we took the day we said goodbye to the RMH and Mac!

 

Daddy, Kinslee, and Mac

 

We have just been hanging out here in the camper this past week.  It's really nice having our own space.  Kinslee has pretty much been eating anything and everything lately!  She wants to eat all day and night.  The steroids have her wanting to eat all the time!  Last Saturday we met my mom with Cason and I went to pick Kinslee up out of her car seat and she felt incredibly heavier than the day before!!!  It was like overnight she had gained a few pounds!  She almost weighed 30 pounds at clinic yesterday!!!!  She weighed only 24 pounds when we first got here!  She's gained almost 6 pounds!!!  It's crazy!!!  You would not recognize her!  In the last week we have been watching her little body grow so thick so fast!  It makes me so sad but the doctor reassures us it's the steroids and once she's off of them she will probably not eat!  So I guess she's storing up for that time! She has not felt sick at all this past week :) which is a blessing!   The only thing we are dealing with right now are potty issues and her mood swings (also caused by steroids).  Please continue for Kinslee to stay healthy and infection free!!!  Next Thursday is the big day 29 for Kinslee!!!  The doctor will do another spinal and blood sample from her bone marrow.  This blood sample will tell us that she is in remission and has Kicked Cancers BUTT!!!  We will not be given results until the next week so we will be staying here until we get those but after that hopefully we will be sent home.  Please pray that ALL the cancer will be gone by this day.  Thank you all for your love support and prayers!!!  Hope everyone has a wonderful weekend!