Just wanted to give everyone a little update on how well Kinslee has been feeling lately. She had a much better week than the one before. She has had energy all week and has felt amazing! She has been eating and sleeping better too! I'm so thankful for all the prayers. Thank you from the bottom of my heart!!!
Tomorrow morning, Kinslee has an appointment with Dr. Ray in Fort Worth and will be getting two different chemo treatments through her port. She has had minimal side affects from these drugs and I pray that she will continue to stay strong during this phase of treatments. She will also start back on steroids for another 7 days. It's been a nice break from them this past week but unfortunately she has to start taking them again. Her counts are also expected to start dropping this week. Please pray she stays well and free from infections and fevers. We feel so blessed by all the love support and prayers our friends and family continually send our way!!! It gives us the strength we need to make it through this journey of healing. Thank you for EVERYTHING!!!! We love you all!
Sunday, March 23, 2014
Monday, March 17, 2014
7 days down and 49 to go of Delayed Intensification
Sorry it's been a week since I've updated the blog but its been a busy week! Last Monday (march 10th) was a busy start to this phase! Kinslee had a spinal, spinal chemo, 2 types of IV chemo and an Echo test. Her counts were great! It was a smooth day overall but by the time we made it to the Echo test Kinslee was so tired that she wanted to be done for the day! Poor girl cried during the entire test. She did not like her little chest and tummy being mashed on! I felt so bad for her! It was not easy on this mommy having to hold her down. It didn't take her long to fall asleep in the car after a crazy and early morning! Unfortunately, she did not have a good night. Her nose had started running during the day and she seemed very congested. She coughed most of the night and vomited several times. I'm sure it was a mixture of the congestion and feeling a little nauseated from the chemo and spinal.
On Tuesday, Kinslee was very exhausted and her back was sore like always after a spinal. She was really wiped out and needy all day. It was stressful and difficult to get her to take her meds (particularly her steroid). She kept wanting to vomit every time I tried giving it to her :( She had to start taking steroids again for the first 7 days of this phase and hates it! She knows its the yucky one! Somehow we managed to get it down her though! It's crazy but getting her to take those nasty steroids is the most stressful thing so far especially when she's congested and the thought of medicine makes her want to gag!!!!
On Wednesday morning, Kinslee started running fever. It was 100.9 and if she gets a fever of 101 we are to call and go in for antibiotics. I decided to call the nurse in Fort Worth because I figured her fever was going to spike any minute. Since she was so congested and running a low grade fever, I knew something had to be wrong. I kept checking her temp and it never reached 101 but was hanging right at 100.9 so I thought about taking off and driving straight to Fort Worth but they wanted me to take her in to see her pediatrician to take a look at her. I'm so glad I did too! She had a double ear infection :( she's never had an ear infection but I was so relieved to know what was causing the fever. She got a big nasty shot of antibiotics and we were on our way. We headed to Fort Worth that afternoon to stay the night because the clinic scheduled her an 8:30 am appointment for the next day to see her doctor and run some blood cultures to rule out anything else and for her scheduled chemo treatment.
Thursday morning was the start to a very long day. We got to the clinic and had some blood work done. Kinslee still had a low grade fever. We went over to infusion to start chemo. Kinslee was miserable :( the doctor decided she needed another round of antibiotics and fluids. The chemo she got lasted an hour. The fluids ran for another hour and the antibiotics took over 30 minutes. Then we waited another 30 minutes or so to watch her and make sure she wasn't going to have any type of reaction. It was a long day for Kinslee and hard on us seeing her so miserable and sick having to go through all that. We ended up staying the night in Fort Worth again since she still had a low grade fever just in case she woke up during the night with a fever. She didn't have any fever before going to bed but had a rough night of not sleeping well. However, she woke up feeling much better on Friday morning. We had a lazy morning and then decided to head on home! That afternoon when we got home Kinslee wanted to play outside and swing! The weather was so nice that we played outside until dark :) She felt pretty good on Saturday and by Sunday she was feeling so much better and finally eating again after not having an appetite most of the week! I've noticed steroids have kicked in because she's not resting well at night, she has some major mood swings and she's eating more now!
Today she had an appointment at 11:30. Her counts are really good probably due to the steroids. She was not happy about having to be there today. She got very upset when they had to access her and was grumpy until they de-accessed her and we left! Sometimes she likes to play in the infusion center while receiving her chemo but not today! She wanted to be held the entire time. She gets a break from steroids this week but will be back on them starting next Monday. I'm praying for a better week than last :) I'm hoping the weather will be nice so we can get her outside to play and swing! We do not go back for chemo until next Monday! Yay! Every four days back and fourth was exhausting but so worth being in the comfort of our home and my own bed!
Once again we want you all to know how special each and every one of you are to us! Thanks for loving and caring for Kinslee so much! Please continue to pray for her during this long and exhausting journey of staying in remission! Thank you so much from the bottom of our hearts!!!
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On Tuesday, Kinslee was very exhausted and her back was sore like always after a spinal. She was really wiped out and needy all day. It was stressful and difficult to get her to take her meds (particularly her steroid). She kept wanting to vomit every time I tried giving it to her :( She had to start taking steroids again for the first 7 days of this phase and hates it! She knows its the yucky one! Somehow we managed to get it down her though! It's crazy but getting her to take those nasty steroids is the most stressful thing so far especially when she's congested and the thought of medicine makes her want to gag!!!!
On Wednesday morning, Kinslee started running fever. It was 100.9 and if she gets a fever of 101 we are to call and go in for antibiotics. I decided to call the nurse in Fort Worth because I figured her fever was going to spike any minute. Since she was so congested and running a low grade fever, I knew something had to be wrong. I kept checking her temp and it never reached 101 but was hanging right at 100.9 so I thought about taking off and driving straight to Fort Worth but they wanted me to take her in to see her pediatrician to take a look at her. I'm so glad I did too! She had a double ear infection :( she's never had an ear infection but I was so relieved to know what was causing the fever. She got a big nasty shot of antibiotics and we were on our way. We headed to Fort Worth that afternoon to stay the night because the clinic scheduled her an 8:30 am appointment for the next day to see her doctor and run some blood cultures to rule out anything else and for her scheduled chemo treatment.
Thursday morning was the start to a very long day. We got to the clinic and had some blood work done. Kinslee still had a low grade fever. We went over to infusion to start chemo. Kinslee was miserable :( the doctor decided she needed another round of antibiotics and fluids. The chemo she got lasted an hour. The fluids ran for another hour and the antibiotics took over 30 minutes. Then we waited another 30 minutes or so to watch her and make sure she wasn't going to have any type of reaction. It was a long day for Kinslee and hard on us seeing her so miserable and sick having to go through all that. We ended up staying the night in Fort Worth again since she still had a low grade fever just in case she woke up during the night with a fever. She didn't have any fever before going to bed but had a rough night of not sleeping well. However, she woke up feeling much better on Friday morning. We had a lazy morning and then decided to head on home! That afternoon when we got home Kinslee wanted to play outside and swing! The weather was so nice that we played outside until dark :) She felt pretty good on Saturday and by Sunday she was feeling so much better and finally eating again after not having an appetite most of the week! I've noticed steroids have kicked in because she's not resting well at night, she has some major mood swings and she's eating more now!
Today she had an appointment at 11:30. Her counts are really good probably due to the steroids. She was not happy about having to be there today. She got very upset when they had to access her and was grumpy until they de-accessed her and we left! Sometimes she likes to play in the infusion center while receiving her chemo but not today! She wanted to be held the entire time. She gets a break from steroids this week but will be back on them starting next Monday. I'm praying for a better week than last :) I'm hoping the weather will be nice so we can get her outside to play and swing! We do not go back for chemo until next Monday! Yay! Every four days back and fourth was exhausting but so worth being in the comfort of our home and my own bed!
Once again we want you all to know how special each and every one of you are to us! Thanks for loving and caring for Kinslee so much! Please continue to pray for her during this long and exhausting journey of staying in remission! Thank you so much from the bottom of our hearts!!!
This is how she spent most of the week!
Sunday, March 9, 2014
Start of next phase on this journey
Kinslee will start the next dreaded phase of treatment bright and early in the morning! She will begin her treatments for the Delayed Intensification phase! I'm nervous but ready to get this phase over with at the same time! Please continue to pray she handles everything throughout this phase! I've been praying every night that she will feel great and get through this phase kicking and fighting showing cancer whose boss!!! Thank you for continuing to shower us with your support love and most importantly prayers! We feel so blessed to have each and every one of you on our side fighting this with us! We love you all!
.JPG)
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